Tuesday, December 29, 2009
Monday, December 28, 2009
Joy
Thursday, December 24, 2009
Santa
Wednesday, December 23, 2009
Monday, December 21, 2009
Update
I just wanted to give a quick update that Lindsey is doing better. We only had to do 2 treatments today and she continues with the antibiotics. We were able to stay clear of the steroids. Things have been super busy around here and it doesn't look like it will ease up till after the holidays. We have one thing happening after another and someone wanted to come look at our house Sunday. At first I was like, "WHAT, it is a mess, no way no they realize that it is Christmas time". After we found out it was a second look we just buckled down, did some major cleaning and stashing in to the early Sunday hours and finished up Sunday afternoon. My house is spotless, so I can't complain now that it is over. We did get feedback today that we are #2 on her list and #1 on her parents so we aren't holding our breath. Oh well, like I said, my house is spotless. Good news though , I am on vacation!!! No work for me until January 9th. My new washer/dryer should arrive tomorrow around 12:45. It doesn't take long for laundry to pile up around here. Lindsey has her second ST session tomorrow and we piled PT on after with the holiday schedule. I should have some pics up of the girls tomorrow.
Thursday, December 17, 2009
Sweet little Wheezy
Rockin' Lindsey
Lindsey just loves to rock back and forth. Ever since they put her in a rocking chair for her 1st year birthday pictures we will just find her randomly rocking back and forth. Put her on something that is supposed to rock with her and she is thrilled. You can imagine her excitement when she tried out one of the rocking boats at the Art Museum last week.
Wednesday, December 16, 2009
Baking Christmas Cookies
I measured everything out while she helped me count and poured the ingredients in.
Tuesday, December 15, 2009
Down Syndrome Association Christmas Party
Saturday, December 12, 2009
Breakfast with Santa
Friday, December 11, 2009
The Christmas Tree is Up
We weren't sure when were going to get the tree up since everything has been pretty much cleared out of out house so maybe someday soon we can move. Brooke just love getting out all the Christmas ornaments and putting them on the tree. They are all at Brooke's eye level so it is a pretty funny tree. Now that it is a Christmas tree with 2 girls it is no longer about white lights and coordinating glass ornaments. Brooke was thrilled when she found some of my old Disney ornaments I bought when I worked at Hallmark in college. I actually had 4 Toy Story ornaments and you would have thought she found a golden bag of M&M's. Brooke still won't leave the ornaments alone and the tree is a little different everyday.
Lindsey gets a big smile on her face if Brooke is close right before she reaches out and grabs hold of her hair.
Lindsey just loves watching the 2 Elmo stockings dance and sing
Thursday, December 10, 2009
A matter of time
Wednesday, December 9, 2009
Speech Therapy/Feeding Evaluation
I admit it, I walked in to the evaluation thinking Lindsey was way behind in the feeding department. She takes 3- 7 oz bottles a day which she rarely finishes and some feedings seem to go on forever. No joke, we could try and give her a bottle for an hour without her finishing it. It is not that she cannot do it but simply she is too busy to sit on our lap and drink a bottle.
Lindsey has 1 jar food at breakfast and 2 jars at lunch and dinner. No problems eating stage 2 foods, it's me with the problem. I am sick of the bottles and stage 2 foods. She could last on them for a very long time.
Anyway, she is doing well with her oral motor skills considering the low tone. She closes her mouth around the spoon and takes the food off. She does chew but mainly just wants to munch and mash the food on top of her mouth or swallow it whole. That is something to work on. Lindsey closes her lips around a straw and is able to bring liquid up through it. Just not enough to make it alright to pitch the bottles. We have have been working with the honey bear cup and she gave me a sip-tip cup to try. She also gave a me a Nuk brush to do a few times a day to help "wake up" her mouth and another texture spoon. We are going to try and add wheat germ to her stage 2 foods and see if that will gradually help get her used to textures. I have rad many times that kids with low tone tend to like highly seasoned (spicy, sour foods) and high tone kids like the bland foods. Lindsey proved that point true when she gnawed away at a sour straw. Ever tried one of the those? Wow, they will make your cheeks pucker. I love sour but a baby when it comes to spicy. The ST said these types of things are good for waking her mouth up and to get her used to the idea of chewing. She said we would be surprised how much she would like salsa and ranch dressing. Since she doesn't have teeth we don't have to worry much about her biting a piece off of the sour straws and its not like she would be unsupervised anyway. The ST said that a slim jim would use the same principle. Weird, didn't think I would be letting Lindsey gnaw on a slim jim or sour straws. Whatever works! Back in 2 weeks and I guess I just need to learn that she won't be on table foods in a few days. Just something to progress to.
In other news, she is finally getting herself up on all fours. A huge accomplishment for her. It wasn't long ago that she screamed anytime we attempted to get her in a 4 point position.
Tuesday, December 8, 2009
Both girls go to the Doctor
Brooke had her 3 year well visit yesterday. She loves reading a book she picked out from the library called My Friend the Doctor so I like to think that helped prepare her. She surprised me and did amazing. Brooke stepped right on up to get a weight and height check.
Weight=27.5 lbs
Height=36inches
10-15th percentile for both. She wasn't all at concerned with the weight since it matches up with the height.
Not sure on measurement but 75th percentile for head circumference. Something has to hold that big brain of her's.
She was quite shy. Can you believe it Brooke not running and talking? When the doctor asked her what Santa was bring her for Christmas she said very quietly into my arm, "not anything". Guess that is one way to end what seemed like an easy conversation to start up with a 3 year old. Brooke sat not saying a word as she looked in her eyes, ears, nose, and mouth. Laid right down on the exam table so she could listen to her heart, lungs, and belly. Loved the idea that she was easily potty trained. Brooke was willing to walk right out with the doctor to pick out 2 Pooh stickers and a sucker to go.
No shots for Brooke but I had to get another MMR while we were there since I still can't seem to be rubella immune. That may have been Brooke favorite part. She wan't happy that the nurse didn't give me a Barbie sticker though.
Lindsey was off to the cardiologist that afternoon. Tim took her to the appointment so I could sleep from working the night before and not much to report.
Weight 18lbs 7 oz-she is going to catch up to Brooke in no time.
VSD remains unchanged and stable
Cardiac clearance done so we will be arranging for her tear ducts to be probed shortly
Spoke with the girls in neurophysiology to get her BAER hearing test done without sedation so that is all set now for next week at nap time. Hopefully I am the one thinking told you so and not them.
Sunday, December 6, 2009
Gingerbread House Extravaganza
The finished project
Leah looks like she was growling at the mess
Lindsey, well she is just happy anyway. Kinda funny watching everyone try and hold up a gingerbread house.
Carrie & Leah's project
Friday, December 4, 2009
Thursday, December 3, 2009
Wednesday, December 2, 2009
Tuesday, December 1, 2009
Guess it was just a 24 hour thing
This was Brooke on Sunday. That morning I played a quick game of Candy Land with her before I was off to bed. I woke up and found out that she had been sick and throwing up since noon. Poor baby, I had to go back to work that night so Tim continued to take care of her and Lindsey. WTG, Tim! He never even woke me up throughout the whole ordeal and had dinner made before I went to work.
She was as happy as can be come Monday morning when she woke up and asked for tacos for dinner.



